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Don't Let MS Keep You from Traveling

Rebecca Black doesn't let MS keep her from traveling

First Person: Traveling with Multiple Sclerosis

Traveling with multiple sclerosis can be difficult, as the stresses from travel could worsen our symptoms.  Consequently, many do not feel travel is possible, especially if requiring a wheelchair.

Diagnosed over two decades ago with MS, I have traveled extensively while in a wheelchair and wielding a cane.  I have made mistakes, but I've enjoyed every second—even when plans go awry.  I've learned that although traveling with MS may be challenging, but it isn't impossible.

Maintain your stress level.

Whether it is a canceled flight, flat tire, or never-ending detours the stress from traveling can be tiring.  If allowed, stress can certainly cause a relapse or exacerbation of symptoms.  Therefore, when a problem arises, as most certainly it will when traveling, I try to find humor in it. 

For example, on a flight to Hawaii, my wheelchair was stowed – as is common – with the luggage.  Unfortunately, when we arrived in the land of warm breezes, my previously perfect wheelchair appeared as if King Kong used it as a plaything.  I could have cried, yelled, or both.  Instead, I requested to borrow an airport chair and laughed about the fact that I would be unique among all the chaired on the island. 

Boost your immune system.

For those with MS, boosting and maintaining a healthy immune system is essential when traveling.  Luckily, I've always filled my plates with immune-boosting foods, like dark greens and a variety of fruits.  However, it isn't so easy when traveling.  Therefore, I always carry a bag of dried cherries and nuts – antioxidants and omega-3s – and take a multivitamin every day.  I also choose fresh fruit and lean protein for breakfast and salads for lunch when possible.   

Ensure accessibility.

Finding that some airports use stairs instead of ramps for their plane, I learned early on to always call ahead.  When making reservations for travel and lodging, state your limitation and inquire about accessibility.  If flying, request an aisle chair if you use a wheelchair full time.  Make sure yours is tagged and will be available for you when you land.  Reserve a wheelchair-friendly van as transport to and from your lodging.    

Don't take for granted that a hotel will be fully accessible just because their site boasts walk-in showers and grab-bars.  When visiting Paris, the elevator in our accessible hotel was tiny with no room for a chair.  The room was hardly wheelchair-friendly as well.  Therefore, ask very specific questions when reserving the room, including door dimensions.  Some wheelchairs cannot fit through European doors. 

Pack the essentials.

Besides packing outfits you'll never wear, pack all medications in the original packaging, and don't forget weatherproof attire.  During a trip to Boston, it rained every day.  I had remembered to pack a lightweight waterproof jacket but didn't consider how wet I would be while sitting in a wheelchair.  The rain-soaked my pants and the seat of my chair.  An inexpensive poncho will keep you and your chair dry.  

I ended up using a large garbage bag for my legs.  Yes, it was hilarious to see.

Don't forget to enjoy yourself.

Fatigue can be our worst enemy, especially when traveling.  There's so much to see and only so much time to do it.  I've learned to slow down every couple of hours and park myself someplace quiet to people watch.  In as little as ten minutes, I'm ready for another round of sightseeing.  Of course, an afternoon nap is a great way to rejuvenate as well.

Keep Reading

Public Swimming Pools Can be Deadly for Those With Autoimmune Diseases

How Becoming a Caregiver for a Stroke Victim Can Change Your Life  

How Does Diet and Exercise Affect Those with Multiple Sclerosis?


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