Skip to main content

Don't Let MS Keep You from Traveling

Rebecca Black doesn't let MS keep her from traveling

First Person: Traveling with Multiple Sclerosis

Traveling with multiple sclerosis can be difficult, as the stresses from travel could worsen our symptoms.  Consequently, many do not feel travel is possible, especially if requiring a wheelchair.

Diagnosed over two decades ago with MS, I have traveled extensively while in a wheelchair and wielding a cane.  I have made mistakes, but I've enjoyed every second—even when plans go awry.  I've learned that although traveling with MS may be challenging, but it isn't impossible.

Maintain your stress level.

Whether it is a canceled flight, flat tire, or never-ending detours the stress from traveling can be tiring.  If allowed, stress can certainly cause a relapse or exacerbation of symptoms.  Therefore, when a problem arises, as most certainly it will when traveling, I try to find humor in it. 

For example, on a flight to Hawaii, my wheelchair was stowed – as is common – with the luggage.  Unfortunately, when we arrived in the land of warm breezes, my previously perfect wheelchair appeared as if King Kong used it as a plaything.  I could have cried, yelled, or both.  Instead, I requested to borrow an airport chair and laughed about the fact that I would be unique among all the chaired on the island. 

Boost your immune system.

For those with MS, boosting and maintaining a healthy immune system is essential when traveling.  Luckily, I've always filled my plates with immune-boosting foods, like dark greens and a variety of fruits.  However, it isn't so easy when traveling.  Therefore, I always carry a bag of dried cherries and nuts – antioxidants and omega-3s – and take a multivitamin every day.  I also choose fresh fruit and lean protein for breakfast and salads for lunch when possible.   

Ensure accessibility.

Finding that some airports use stairs instead of ramps for their plane, I learned early on to always call ahead.  When making reservations for travel and lodging, state your limitation and inquire about accessibility.  If flying, request an aisle chair if you use a wheelchair full time.  Make sure yours is tagged and will be available for you when you land.  Reserve a wheelchair-friendly van as transport to and from your lodging.    

Don't take for granted that a hotel will be fully accessible just because their site boasts walk-in showers and grab-bars.  When visiting Paris, the elevator in our accessible hotel was tiny with no room for a chair.  The room was hardly wheelchair-friendly as well.  Therefore, ask very specific questions when reserving the room, including door dimensions.  Some wheelchairs cannot fit through European doors. 

Pack the essentials.

Besides packing outfits you'll never wear, pack all medications in the original packaging, and don't forget weatherproof attire.  During a trip to Boston, it rained every day.  I had remembered to pack a lightweight waterproof jacket but didn't consider how wet I would be while sitting in a wheelchair.  The rain-soaked my pants and the seat of my chair.  An inexpensive poncho will keep you and your chair dry.  

I ended up using a large garbage bag for my legs.  Yes, it was hilarious to see.

Don't forget to enjoy yourself.

Fatigue can be our worst enemy, especially when traveling.  There's so much to see and only so much time to do it.  I've learned to slow down every couple of hours and park myself someplace quiet to people watch.  In as little as ten minutes, I'm ready for another round of sightseeing.  Of course, an afternoon nap is a great way to rejuvenate as well.

Keep Reading

Public Swimming Pools Can be Deadly for Those With Autoimmune Diseases

How Becoming a Caregiver for a Stroke Victim Can Change Your Life  

How Does Diet and Exercise Affect Those with Multiple Sclerosis?


Comments

Popular posts from this blog

Food Review: Trader Joe’s Animal Crackers

Tub of Fun Found in Trader Joe's Animal Crackers If you are like me, every time I see a box of animal crackers, I relive my childhood years of drooling over a box decorated as if it is a red circus boxcar filled with exotic animals.    My favorite cookie/cracker was the elephant.   Therefore, when I noticed a tub --yes an entire tub-- of animal cookies on a Trader Joe’s shelf, I squealed like a little girl and promptly tossed one in my cart. As a fan of simple English style cookies, Trader Joe’s Organic Animal Crackers are a perfect fit for me.  They are crunchy, light, great with hot beverages, and shaped like animals.  What could be better?  Right?  The real surprise with these cookies is that these are not your typical guilty-pleasure snacks.  Oh no.  These puppies —or should I say camels -- are low in fat and sodium, vegan, organic and only 120 for 17 delicious cookies!  There are even tigers in the tub.  It just gets more and more exciting as I eat my way through

How to Grill Herbal-Rubbed Chicken Breast Perfectly

Look out baby, Memorial Day is nearing so barbecue season has officially begun        I bet this sounds familiar.    You are standing in the middle of your backyard drooling on the bucket of just pulled weeds because an enticing aroma of yummy barbecue wafts through the air.    Sadly, it is not coming from your grill.    The bad and good news of this tasty temptation is that I'm that neighbor torturing you with mouthwatering BBQ aromas, but I'm letting you in on some of my secrets!   Good BBQ begins in the kitchen Although not a food snob, I am particular.  I believe that the best 'cue begins in the kitchen.   Fresh food is a must, and it has to be cooked just right.  Moreover, whatever goes on the grill must be bursting with flavor.  Luckily, I have a prolific herb garden.  This won't rub you the wrong way Since I tend to lean toward Mediterranean dishes, specifically Italian food , I use homegrown lemons – also from my garden – and an herbal rub for my meat. 

Using Teachable Moments When Planning & Hosting Parties

Dear Rebecca, What do children and teens learn from their parent’s throwing parties ? Parent Dear Parent, Children of all ages learn everything from their parents.   They learn all their manners , which is basically how we treat others and ourselves.   They also learn etiquette, which is the protocol, how we behave, or how we are expected to behave in public.   So, if a child’s parents throw raucous parties with alcohol and loud music, the child will believe that this is what is expected at parties.   If the parents cater to their guests, treating them as special, the child will learn that he/she should treat their guests as special.   Parents are their child’s best teachers to teach him/her about life and being a good person. Pro-Tip Involve your child in the planning and preparation of the party.  Teach him/her how to focus on guests' needs. Most sincerely, Rebecca More by Rebecca Q & A: The Best and Worst Parties I’ve Hosted or Attended String Pasta Wit